Pain makes it real. (ps_make_it_hurt) wrote in disabled_teens,
Pain makes it real.

Hi, i'm new.

1.Name: Allison
2.Age: 19
3.Location NJ
4.Disability:  spinabifida, I have full use of right leg weakness in left, i wear a plastic like mid calf leg brace.
5:Hobbies: Music,Art, anything new and intresting



I've just recently, at the age of 19 have started to learn what Meningocele really is, and I've never met or talked to anyone who has it like I do. I have the Meningocele which is the cyst on the back that was repaired at birth and other surgeries as a grew because i also had a tethered spinal cord, no one ive met has ever had Meningocele, tethered cord, and damage to the left leg it's been written about and even my doctors say it's different, I mean thank God i found out what it is, i thought it was a fatty like tumor on my back and I was going to have it lipoid, but then I was talking to my pain management doctor and he explained to me what it really is, so yeah I'm blabbing, I was just wondering if anyone else here has this knows anyone who has it or may know of any books, websites or anything speaking of a case of this nature.

And another thing, Do thertherd spinal cords and Meningocele go hand in hand?

I'm really sorry i'f  i'm coming off ignorant, but all my spinal surgries stoped at age 8 and I wasn't educated enough to ask questions and sometimes even when my mother would ask they didn't have the awensers.
And anyone i've ever seen known or am friends with who have spinabifida are the cases where they are wheelchair bound.


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